The Punjab and Haryana High Court has asked the Haryana Government to respond to a petition alleging that treatment for Haemophilia, a rare genetic blood disorder, is not being provided in all districts despite an official policy mandating it.
A Bench of Chief Justice Sheel Nagu and Justice Sanjiv Berry noted that the petitioners had raised concern over non-compliance with the State’s own policy decisions dated October 19, 2012, and amended on November 12, 2018, which called for accessible treatment across districts.
“The grievance of the petitioners is that treatment for Haemophilia is not available in all districts of the State of Haryana,” the Court observed.
The petitioners also drew attention to similar cases being heard by the Delhi High Court. In Mukul Gandhi & Ors vs. Government of NCT of Delhi & Ors (WP(C) No.16449 of 2024), the Delhi High Court had directed both the Centre and Delhi Government to submit reports on the availability of Antihemophilic Factor (AHF) injections, which are vital for those suffering from the disorder.
In another case, Sagar Sharma v. Health & Family Welfare, the Delhi High Court ordered Lok Nayak Hospital to provide the injection whenever needed and ensured that a Hematologist is available during the course of treatment.
Taking note of these developments, the Punjab & Haryana High Court has posted the matter for further hearing on July 31, when it will consider granting interim relief.
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